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Notes for the Support Team - Words Matter: Original statement: At least… Rewritten: I'm so sorry this happened to you. It isn't right or fair. Nothing can make up for the loss of your child. -Miranda Hernandez, Adrian's Mother

At least…

When I was new in my grief, I had a good friend tell me, “at least you can pregnant.” He almost immediately became my EX-good friend…There is literally no statement that can follow the words “at least” that is in any way supportive or gentle or kind. Nothing. It simply isn’t possible.

Notes for the Support Team - Words Matter: Original question: Why didn't you…? Rewritten: I have no idea what I would have done were I in your place. I will certainly never second-guess your decisions. -Miranda Hernandez, Adrian's Mother

Why didn’t you…?

“Why didn’t you…”

Have you ever said these words? Many people have. It’s a common question the bereaved experience after loss, particularly if or when a loss may have been preventable. It’s also a form of distancing; of inserting a barrier in the conversation.

I constantly wish someone had told me stillbirth was SO VERY COMMON. -Miranda Hernandez, Adrian's Mother

I Wish Someone Had Told Me Stillbirth Was So Common

I was educated & open to new information, & I thought I knew everything…And then the nightmare that is stillbirth rose up & broke me. Despite my curiosity, I was hit by the fact that NO ONE in my world had thought to tell me that stillbirth was SO VERY COMMON. 1 in 160. It’s a freaking emergency.

Notes for the Support Team - Words Matter: Original Statement: Having a birthday party for a dead child is weird. Rewritten: I've never been to a birthday party for a deceased child, but I'd love to honor him in this way. How can I help? -Miranda Hernandez, Adrian's Mother

Having a birthday party for a dead child is “weird”

Grief is hard, both for the bereaved & their loved ones. But however uncomfortable you feel, think about the impact of your actions & words. You don’t have to understand to support. And your support means everything. If a bereaved parent invites you to birthday party for their child, please come.

Notes for the Bereaved -  You don't have to be brave. Bravery is ALWAYS a choice. -Miranda Hernandez, Adrian's Mother

You don’t have to be brave

You’ve probably heard that word a lot lately: “You’re so brave; I don’t know how you do it.” And it maybe feels a bit disingenuine.⁠ What does “brave” even mean?⁠ You don’t have to be brave.

Notes for the Bereaved -  There is NO time limit on grief. Take whatever time you need. -Miranda Hernandez, Adrian's Mother

There is NO Time Limit on Grief

I was sitting with the patient advocate, and I was surprised to see the tears in his eyes, and they weren’t entirely for me. It turns out he had also lost a child to stillbirth—30 YEARS AGO. And he STILL grieved. Because there is no time limit on grief.

Notes for the Support Team -  Your pain is important. Their pain is MORE important. Don't ask them to bear the burden of comforting you. -Miranda Hernandez, Adrian's Mother

Your pain is important. Their pain is MORE important.

If a loved one comes to you in pain, take a moment and acknowledge your own feelings about the situation. You are allowed to have these feelings. You are allowed to grieve this second-hand grief. But please be cognizant of not reflecting it back on the person who brought it you.

Notes for the Support Team -  Pregnancy after loss is one of the most beautifully life-affirming and also simultaneously terrifying events your loved ones can experience.  If your loved one has shared this news with you, it is likely because they trust you. Be worthy of that trust. -Miranda Hernandez, Adrian's Mother

Mirror Reality in Pregnancy After Loss

Pregnancy after loss is one of the most beautifully life-affirming and also simultaneously terrifying events your loved ones can experience. If your loved one has shared this news with you, it is likely because they trust you to be there for them, in the bad as well as the good. Be worthy of that trust.

Notes for the Support Team -  It's hard to feel sad and helpless when someone you love is struggling after loss. It's hard to sit there in the darkness and support them when they are most in pain. But if you can do that—your support means everything. -Miranda Hernandez, Adrian's Mother

Accept that you feel helpless and you will be so much more helpful

It’s hard to feel sad and helpless when someone you love is struggling after loss. It’s hard to sit there in the darkness and support them when they are most in pain. It’s hard, but if you can do it anyway; if you can accept your helplessless and move forward, you will be more helpful than you know.

Notes for the Support Team -  It's easy to disappear in times of tragedy. It's hard to live with yourself afterwards. -Miranda Hernandez, Adrian's Mother

It’s Both Easy & Hard to Disappear After Loss

Sometimes you don’t understand the impact of your actions, or your failure to act, until the same situation happens to you. And when some of my own friends disappeared like I disappeared on my cousin, I understood how much it was hurtful. And I was filled with regret.

Notes for the Support Team -  It is far easier for you to reach in than it is for the bereaved to find the strength to "reach out".

“Reach Out” or Reach In?

There is this trend in modern times, of building all these mental health resources and installing hotlines, but we don’t talk enough about how hard it can be for those who are struggling to pick up the phone. When I was in my darkest place, I didn’t have it in me, most days.

Notes for the Support Team -  Be cautious of projecting your experience or your feelings onto your loved one.  Even under similar circumstances, their experience is likely to be different than yours. -Miranda Hernandez, Adrian's Mother

Be Cautious of Projecting Your Feelings

It’s a hallmark of our culture that we like to share stories. It makes us feel less alone in the darkness & this is only good. What hurts, though, is when someone makes assumptions. Be cautious of projecting your experience or your feelings onto your loved one.

Notes for the Bereaved -  You are under no obligation to turn your tragedy into something beautiful. You are allowed, todays and always, simply to exist. -Miranda Hernandez, Adrian's Mother

No Obligation to turn Tragedy into Beauty

Plenty of people going through loss and grief find themselves struggling, months or even years later, and THAT’s OKAY. Loss and grief are hard. No one is required to overcome their pain or transform their struggles into anything.

We need to talk about grief. -Miranda Hernandez, Adrian's Mother

We need to talk about grief

We need to talk about grief.
We need to talk about death & the fact that it happens.
We need to talk about relationships & how they don’t go away even when someone dies.
We need to talk about the realities of loss & the complexities inherent in planning a life for someone who never gets to live it.

Refusing to talk about or even consider that death happens is not going to keep it from happening. Death isn't Rumpelstiltskin. It doesn't work that way. -Miranda Hernandez, Adrian's Mother

Refusing to Talk About Death; Death Isn’t Rumpelstiltskin

The only thing that happens when we refuse to consider the possibility of death, is that we refuse at the same time to plan for it, or prepare. We refuse to plan for some fairly necessary things like life insurance. Or safe pregnancy…

There is no asterisk to the things that are allowed in the grief experience. -Miranda Hernandez, Adrian's Mother

There is no Asterisk to the things Allowed in Grief

It’s something I experienced, early in my grief: Do what you need, *but understand that eventually you will have to stop grieving and move on. And man, does this hurt! Because who defines this concept of “too much” of anything? Is it really possible to have too much grief? I don’t think so.

Notes for the Bereaved -  You don't have to be a noble victim. You are allowed to be a fallible human being, just like the rest of the world. -Miranda Hernandez, Adrian's Mother

You don’t have to be a noble victim

In reality, victims don’t have to fit a prescribed narrative. Tragedy and loss are hard, and real people handle these things in unique and individual ways.

Notes for the Support Team - Words Matter: Original statement: Let me know if I can do anything for you. Rewritten: Can I bring you dinner this evening? Can I help you with the laundry? I'm going to the store this evening; can I bring you anything? -Miranda Hernandez, Adrian's Mother

Let me know what you need

When the bereaved are deep in their grief, they often don’t know what they need. Please consider offering specific things:
I’d like to bring you dinner this evening. Is that okay?
Would you be interested in a walk in the park tomorrow morning?
A simple change in phrasing makes such a difference.

Notes for the Support Team - Words Matter: Original statement: I wish I could take your pain away.  Rewritten: I understand your feelings are important. I would never want to minimize or try to take them away. I will always be here to listen. -Miranda Hernandez, Adrian's Mother

I wish I could take your pain away

I think something that isn’t realized about loss is that pain after loss is sometimes important; it’s a measure of the strength of the love that remains. Instead of wanting to remove that pain, consider giving it a place. Listen without judgement. Let your loved one’s complicated feelings exist.

Notes for the Support Team -  You aren't going to be perfect. Show up anyway. -Miranda Hernandez, Adrian's Mother

You aren’t going to be perfect. Show Up Anyway.

Your words may be awkward. You may stumble. You may stick in your foot in your mouth entirely. It’s still okay. What’s important is that you acknowledge the loss. That you embrace the awkwardness. That you show up anyway.

Even as a bereaved parent, I still don't always know the right words to say. -Miranda Hernandez, Adrian's Mother

The Bereaved Don’t Always Have Words Either

Almost 4 years in this community, and I can identify most of the wrong things to say. I write scripts and stories. I try to make things better for other people. And sometimes, still, when it comes to those I care about, words fail me.

Notes for the Support Team -  When someone is in the thick of grief, "someday" is pretty meaningless. Sit with them in the hard parts, today, instead. -Miranda Hernandez, Adrian's Mother

“Someday” is Meaningless

What you need to understand is that your loved one isn’t there right now; they are here. And here, today, they are hurting. As much as you want to point them to “someday,” it is so much more important to acknowledge where they are, today.

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